So, July (& the last five days of June) goes down as one of the more interesting months of our lives. Terrifying, hopeful, uncertain, overwhelmed, faithful, supportive, loving, horrible, and just about any other "feeling" word you can think of. It seems I've been through them all.
On the outside Mike is so positive and upbeat & looks great. The "same ol' Mike", albeit more tired. On the inside though, he must be going through most of what I have, but on an even larger scale. This past month has made us stronger in our relationship. It was pretty damn good to begin with, but going through something like this really puts things into perspective. It's kind of cliche, but it's true.
August will be a fresh start of our "new normal". There will be more uncertainty & waiting and more wondering what the future will hold, but we shouldn't have another shock like the one that started this whole thing. We kind of have an idea of the direction this could take. Two out of three of them aren't aren't great. We're praying for the other one.
Saturday, July 31, 2010
Friday, July 30, 2010
July 30
What a month this has been! Reflecting back it's like three lifetimes crammed into 5 weeks. I'm so glad I decided to start the blog. I can remember what it felt like to be told Mike had cancer, but I won't always be able to bring that feeling back. Kind of like childbirth, I guess. If you could really remember how much pain labor and delivery is, everyone would be an only child.
Through all of this I have been reminded over and over again how fortunate I am to have the life I do. Friends, family, acquaintances, even people we have never met putting forth so much effort to support the four of us. I look at Mike and see how much he loves me and the kids. I know he'll do whatever it takes to be here with us.
Right now we're in a pretty good place with no more news expected until August 18. After that we'll see where we go next. In the meantime I'll try not to think about the uncertainty that surrounds us and instead focus on what I am certain about. I love my husband, my kids, family & friends and appreciate all they bring to my life.
Now I'm headed upstairs to watch a movie & have some ice cream with the family.
Through all of this I have been reminded over and over again how fortunate I am to have the life I do. Friends, family, acquaintances, even people we have never met putting forth so much effort to support the four of us. I look at Mike and see how much he loves me and the kids. I know he'll do whatever it takes to be here with us.
Right now we're in a pretty good place with no more news expected until August 18. After that we'll see where we go next. In the meantime I'll try not to think about the uncertainty that surrounds us and instead focus on what I am certain about. I love my husband, my kids, family & friends and appreciate all they bring to my life.
Now I'm headed upstairs to watch a movie & have some ice cream with the family.
Thursday, July 29, 2010
Lymph Nodes really are clear!
Found out today from the surgeon that the second pathology on the nodes confirmed they were in fact clear of any cancer cells! At least that piece can be put to rest now and for that I am thankful & in a much better mood than I have been the last few days.
Today we received paperwork in the mail from the genetic counselor. Information such as maternal & paternal grandparents, parents & siblings, their current age & age of cancer diagnosis if applicable. This information will then be reviewed by the genetic counselor who will then determine if Mike should come in for genetic counseling. We'll get that in the mail tomorrow and then wait. Again.
We figure the rest of our lives will be spent waiting for one thing or another, but I imagine that will eventually become routine. Another "new normal".
Until then, I'm going to focus on figuring out what we're going to do on our family vacation in August.
Today we received paperwork in the mail from the genetic counselor. Information such as maternal & paternal grandparents, parents & siblings, their current age & age of cancer diagnosis if applicable. This information will then be reviewed by the genetic counselor who will then determine if Mike should come in for genetic counseling. We'll get that in the mail tomorrow and then wait. Again.
We figure the rest of our lives will be spent waiting for one thing or another, but I imagine that will eventually become routine. Another "new normal".
Until then, I'm going to focus on figuring out what we're going to do on our family vacation in August.
Wednesday, July 28, 2010
Better today - sort of
Afternoon...
Warning to those of you still following the blog - I'm just doing more complaining today...
I seemed to be the only person having a hard time yesterday dealing with the great news about Mike not having to go through chemo. Everyone who has been on this journey with us was so excited to hear it, but I just couldn't get there. What is wrong with me that I'm not happier about the news? I've been struggling since yesterday to try and make sense out of what I actually am feeling. Some of it I'm almost afraid to put on the blog because of how it might be interpreted. Maybe today will just be saved as a draft. We'll see.
Of course I don't want Mike to go through anymore than he has to and chemo would certainly be a rough road. However, a small part of me wishes we were dealing with Stage II, then Mike could get chemo and we would know there is nothing left of the damn cancer. How horrible of a thought is that??? To wish my husband had Stage II cancer instead of Stage I? By being Stage I and not having any additional treatment available there is a lingering concern that all of the cancer cells from the polyp were not removed. I know he'll have frequent colonoscopies and there is talk of doing a PET scan to check other areas of his body, but I want this thing fixed NOW. I don't want another 2 or 3 or 6 months of waiting around for more answers. I guess I need to learn how to deal with the information I have at the moment and move on. Easier said than done.
There is so much out there about not living in fear of cancer once you've gone through it. I guess I'm not there though. I'm fearful about cancer cells left behind from the polyp. I don't want to spend the rest of our lives afraid of something that may or may not come back. I'll get there eventually I imagine - just need to have more faith. In the meantime I'm working on getting through this weird loneliness I feel because I'm not as excited as everyone else.
Evening...
I guess I'll post this anyway. I'm feeling a bit better than I was earlier and I need to keep reminding myself that this is a process. All of the feelings I have are OK to have - maybe even "normal". Without saying it outright, Mike made me realize I'm also taking this frustration with myself & the situation out on the kids even though that's the last thing I want to be doing. When we first had the diagnosis, we spent the next two weeks leading up to surgery by spending as much quality time together as we could. We had a lot of fun despite what was looming just ahead. I need to go back to that and enjoy this time we have before the next scheduled doctor appointment in mid-August. Instead of focusing on all that I am afraid of and have no control over, I should be focusing on what's most important. Mike is here, surgery was successful, we have an outstanding support system, our kids are happy, our faith is strong and we will continue to fight until we win this battle.
Warning to those of you still following the blog - I'm just doing more complaining today...
I seemed to be the only person having a hard time yesterday dealing with the great news about Mike not having to go through chemo. Everyone who has been on this journey with us was so excited to hear it, but I just couldn't get there. What is wrong with me that I'm not happier about the news? I've been struggling since yesterday to try and make sense out of what I actually am feeling. Some of it I'm almost afraid to put on the blog because of how it might be interpreted. Maybe today will just be saved as a draft. We'll see.
Of course I don't want Mike to go through anymore than he has to and chemo would certainly be a rough road. However, a small part of me wishes we were dealing with Stage II, then Mike could get chemo and we would know there is nothing left of the damn cancer. How horrible of a thought is that??? To wish my husband had Stage II cancer instead of Stage I? By being Stage I and not having any additional treatment available there is a lingering concern that all of the cancer cells from the polyp were not removed. I know he'll have frequent colonoscopies and there is talk of doing a PET scan to check other areas of his body, but I want this thing fixed NOW. I don't want another 2 or 3 or 6 months of waiting around for more answers. I guess I need to learn how to deal with the information I have at the moment and move on. Easier said than done.
There is so much out there about not living in fear of cancer once you've gone through it. I guess I'm not there though. I'm fearful about cancer cells left behind from the polyp. I don't want to spend the rest of our lives afraid of something that may or may not come back. I'll get there eventually I imagine - just need to have more faith. In the meantime I'm working on getting through this weird loneliness I feel because I'm not as excited as everyone else.
Evening...
I guess I'll post this anyway. I'm feeling a bit better than I was earlier and I need to keep reminding myself that this is a process. All of the feelings I have are OK to have - maybe even "normal". Without saying it outright, Mike made me realize I'm also taking this frustration with myself & the situation out on the kids even though that's the last thing I want to be doing. When we first had the diagnosis, we spent the next two weeks leading up to surgery by spending as much quality time together as we could. We had a lot of fun despite what was looming just ahead. I need to go back to that and enjoy this time we have before the next scheduled doctor appointment in mid-August. Instead of focusing on all that I am afraid of and have no control over, I should be focusing on what's most important. Mike is here, surgery was successful, we have an outstanding support system, our kids are happy, our faith is strong and we will continue to fight until we win this battle.
Tuesday, July 27, 2010
No Chemo
Mike & I just got back from meeting with the oncologist. Based on the original findings, Mike is rated at a T2,N0 - or Stage 1 colon cancer. That alone is HUGE considering there was some time spent thinking he was Stage 3, but hoping for Stage 2. We still don't have the results of the second biopsy that was done on the nodes, but Dr Arbaje didn't seem overly concerned about that. Apparently, I'm the only one that is. For some reason I'm having a hard time just accepting things as they are and I wish I knew why.
Actually, I think I do know. I think I was hoping for a concrete answer, which I should have known wouldn't happen based on the ups and downs of this past month. I wanted to hear "this is the treatment, it will take this long and we will follow-up with scheduled screenings". Instead we were told that while the main tumor that was removed and the surrounding areas are no longer an issue, the polyp that was removed from the lower end of Mike's colon and tested positive is of concern. However, because Mike is only Stage 1, chemo is not an option despite concern there may be cancer cells left from the polyp. In addition, there is still the genetic counseling and subsequent testing to be done at a later date.
I am absolutely thankful the surgery went so well and the tumor is gone and it appears the lymph nodes were not involved so Mike won't have to go through the horror of chemo. I guess I'm struggling with not having a specific plan. You'd think I'd have learned by now - it is what it is.
Actually, I think I do know. I think I was hoping for a concrete answer, which I should have known wouldn't happen based on the ups and downs of this past month. I wanted to hear "this is the treatment, it will take this long and we will follow-up with scheduled screenings". Instead we were told that while the main tumor that was removed and the surrounding areas are no longer an issue, the polyp that was removed from the lower end of Mike's colon and tested positive is of concern. However, because Mike is only Stage 1, chemo is not an option despite concern there may be cancer cells left from the polyp. In addition, there is still the genetic counseling and subsequent testing to be done at a later date.
I am absolutely thankful the surgery went so well and the tumor is gone and it appears the lymph nodes were not involved so Mike won't have to go through the horror of chemo. I guess I'm struggling with not having a specific plan. You'd think I'd have learned by now - it is what it is.
Monday, July 26, 2010
Meeting the next "team member"
Tomorrow Mike and I will meet with Dr Arbaje, the oncologist. Don't really have any idea of what to expect because it could realistically be just about anything. Hopefully we will find out if the lymph nodes are in fact clear, or if pathology found something that had been missed before. I feel like I'm going in circles sometimes. It could be this or it could be that.
It's funny, though, how life really does just go on again. Here we are dealing with what is easily the biggest crisis of our lives, but honestly, it does become the "new normal". We took the kids to the pool today, Cal had Cub Scouts tonight, we ate a great dinner that, once again, someone else made for us. Mike is worn out tonight though. Swimming took more out of him that maybe he thought it would and as far as the kids are concerned, "daddy is back". With the staples out, Mike driving again, etc it's easy for Cal & Zoey to forget about the last month.
I don't like waiting & wondering what the news will be tomorrow, but it can't possibly be worse than what we heard on June 25. So, I'll hold on to that and know that once again, we will get through whatever comes next.
It's funny, though, how life really does just go on again. Here we are dealing with what is easily the biggest crisis of our lives, but honestly, it does become the "new normal". We took the kids to the pool today, Cal had Cub Scouts tonight, we ate a great dinner that, once again, someone else made for us. Mike is worn out tonight though. Swimming took more out of him that maybe he thought it would and as far as the kids are concerned, "daddy is back". With the staples out, Mike driving again, etc it's easy for Cal & Zoey to forget about the last month.
I don't like waiting & wondering what the news will be tomorrow, but it can't possibly be worse than what we heard on June 25. So, I'll hold on to that and know that once again, we will get through whatever comes next.
Sunday, July 25, 2010
Ready to get on with it
I debated about updating the blog over the last few days while I was away for a long weekend with friends. I decided against it for a few reasons. Probably most importantly was that I didn't NEED to write things down this weekend. Thanks to Michelle & Maureen I could pretend that life was normal for a few days. Not that my normal life includes hitting multiple wineries in two days and experiencing an incredible concert by one of my favorite singers. I am grateful to both of them for humoring me when I mentioned anything about our "cancer situation", which I REALLY tried not to do. Good wine, good food & girl time was just what I needed to recharge.
Being in a small venue (maybe 300-500 people) to hear Nadirah Shakoor sing was amazing. She is beautiful inside and out, graceful & gracious & has one of the most amazing voices I have ever heard. There were a few times I really wished Mike was with me, especially during certain songs, but I didn't let those thoughts get in the way of appreciating the moment.
I also am incredibly thankful that I have a husband who encouraged us to go despite everything else that is going on. More.
I'm ready to get on with it. We meet with the oncologist on Tuesday and go from there. Right now I am feeling more than "cautiously optimistic".
Being in a small venue (maybe 300-500 people) to hear Nadirah Shakoor sing was amazing. She is beautiful inside and out, graceful & gracious & has one of the most amazing voices I have ever heard. There were a few times I really wished Mike was with me, especially during certain songs, but I didn't let those thoughts get in the way of appreciating the moment.
I also am incredibly thankful that I have a husband who encouraged us to go despite everything else that is going on. More.
I'm ready to get on with it. We meet with the oncologist on Tuesday and go from there. Right now I am feeling more than "cautiously optimistic".
Wednesday, July 21, 2010
An outlet
It's hard to believe that one month ago today Mike went to see Dr Kramer because he was feeling tired and worn out. In some ways it feels like a lifetime ago rather than just a few weeks. When I read back over earlier posts it's almost as if I'm reading about someone else's life.
A couple of days ago I decided to add a counter to the blog. I had been hearing from a lot of people that they were reading it or knew of people that were reading it. On one hand I'm amazed that there are so many people reading this thing. On the other hand it just confirms how important Mike is to so many people.
This blog started as a way for me to remember everything and ended up as a therapy of sorts. A way to kind of purge myself of some of the fear, anger, uncertainty, loneliness & frustration that sometimes seems to take over. I figure if I can put it down in "writing" maybe I won't take it out so much on those I love most. Won't complain as much, etc. If people want to read about my complaining, fear, anger, etc. that's up to them. At least I'm not forcing it on anyone. Most of all Mike and the kids.
Sometimes I wonder how I can possibly feel lonely. I think part of it is that, from my current perspective, everyone else has their own lives to lead. "Normal" lives that aren't surrounded with so many unknowns. That was us just a month ago. We always had a pretty good idea of what was going to happen next. Sure the routine can get monotonous sometimes and things come up now and then to throw a kink in the best laid plans, but we weren't prepared for something like this. Something that seems to be present every waking minute. So much depends on the results of something else.
It's easy to get wrapped up in the chaos of emotions, which can make if difficult to realize how fortunate we actually are. The tumor was smaller than originally thought. Maybe the lymph nodes really are clear. Mike is strong, young and healthy and healing well from surgery. Our doctors are determined to cure Mike and we continue to receive love & support from so many people. Sometimes, though, it's hard to find that in the midst of all the other crap.
I love my husband and want to do everything I can to make this experience even a little bit less awful for him. It's our life together, but it's his body not mine, that has to go through so much. I know I can't change that, so if I can make things a bit easier for him in areas where I do have some control, I will. If that means spewing more gibberish into a blog, then that's what I'll do.
A couple of days ago I decided to add a counter to the blog. I had been hearing from a lot of people that they were reading it or knew of people that were reading it. On one hand I'm amazed that there are so many people reading this thing. On the other hand it just confirms how important Mike is to so many people.
This blog started as a way for me to remember everything and ended up as a therapy of sorts. A way to kind of purge myself of some of the fear, anger, uncertainty, loneliness & frustration that sometimes seems to take over. I figure if I can put it down in "writing" maybe I won't take it out so much on those I love most. Won't complain as much, etc. If people want to read about my complaining, fear, anger, etc. that's up to them. At least I'm not forcing it on anyone. Most of all Mike and the kids.
Sometimes I wonder how I can possibly feel lonely. I think part of it is that, from my current perspective, everyone else has their own lives to lead. "Normal" lives that aren't surrounded with so many unknowns. That was us just a month ago. We always had a pretty good idea of what was going to happen next. Sure the routine can get monotonous sometimes and things come up now and then to throw a kink in the best laid plans, but we weren't prepared for something like this. Something that seems to be present every waking minute. So much depends on the results of something else.
It's easy to get wrapped up in the chaos of emotions, which can make if difficult to realize how fortunate we actually are. The tumor was smaller than originally thought. Maybe the lymph nodes really are clear. Mike is strong, young and healthy and healing well from surgery. Our doctors are determined to cure Mike and we continue to receive love & support from so many people. Sometimes, though, it's hard to find that in the midst of all the other crap.
I love my husband and want to do everything I can to make this experience even a little bit less awful for him. It's our life together, but it's his body not mine, that has to go through so much. I know I can't change that, so if I can make things a bit easier for him in areas where I do have some control, I will. If that means spewing more gibberish into a blog, then that's what I'll do.
Tuesday, July 20, 2010
Just a plain old ordinary day
Aside from Mike still recovering from surgery, today was a pretty average day. Kids went to VBS this morning, I went to the dermatologist after having missed my appointment last week, Cal had a cub scout thing tonight and we spent the afternoon as a family hanging out at at Pecks. I guess the only thing out of the ordinary was that I had a small mole removed from my wrist that will be biopsied. Pretty exciting getting stitches for the first time in my life. Funny how I'm not the least bit fazed about having a "suspicious" mole removed. In the scheme of things, it's pretty boring.
I'm looking forward to my weekend away with Michelle & Maureen. Thelma, Thelma & Louise (without driving off a cliff at the end). Found out that one of the wineries will have a Jimmy Buffett tribute band with guest singer Nadirah Shakoor who is one of Jimmy's backup singers. Figure we'll hit most of the wineries on Friday so we can spend as much time as we want at Von Jakob. It will be good to get away and that little bit of guilt I was feeling before is pretty much gone. Did I mention I'm excited to get to see Nadirah?
Nadirah Shakoor - Making Music for Money
Back to work for me tomorrow. Mike is driving again so he can take the kids to VBS and then to the sitter for the day. Will be nice to have another "normal" day. Although, as I know full well, that can all turn in an instant. Guess that's what keeps things exciting.
I'm looking forward to my weekend away with Michelle & Maureen. Thelma, Thelma & Louise (without driving off a cliff at the end). Found out that one of the wineries will have a Jimmy Buffett tribute band with guest singer Nadirah Shakoor who is one of Jimmy's backup singers. Figure we'll hit most of the wineries on Friday so we can spend as much time as we want at Von Jakob. It will be good to get away and that little bit of guilt I was feeling before is pretty much gone. Did I mention I'm excited to get to see Nadirah?
Nadirah Shakoor - Making Music for Money
Back to work for me tomorrow. Mike is driving again so he can take the kids to VBS and then to the sitter for the day. Will be nice to have another "normal" day. Although, as I know full well, that can all turn in an instant. Guess that's what keeps things exciting.
Monday, July 19, 2010
Cautiously Optimistic
Mike had the staples removed this morning and doc said everything looks good as far as the incision is concerned. Next week we'll meet with the oncologist and find out what happens next.
In the meantime, Dr Dachman is going to have pathology look at the lymph nodes again. There were three that were significantly larger and harder than the other 27. Seems that when a biopsy is done only small slices are taken and it's possible that although the slices taken from the three enlarged nodes were in fact clear, other portions of those same nodes may not be. In an effort to be "cautiously optimistic" the nodes will be checked again. It was nice to have a few days of not worrying about that.
If the nodes are clear after the additional biopsies, it is possible that the oncologist will not prescribe chemo. However, Mike will need to have some genetic testing in the near future to find out if he is carrying a virus that makes him more susceptible to colon cancer. If that's the case, chemo won't make a bit of difference and we'll be talking about other options like a complete colectomy to make sure Mike can remain cancer free.
Just when it seems we have this thing figured out and come to terms with one aspect of it, something else pops up. On the up side, Mike is feeling quite a bit better. Still tired, but has started on the iron supplements again so hopefully he can start rebuilding some of the iron stores his body used up before all of this started.
In the meantime, Dr Dachman is going to have pathology look at the lymph nodes again. There were three that were significantly larger and harder than the other 27. Seems that when a biopsy is done only small slices are taken and it's possible that although the slices taken from the three enlarged nodes were in fact clear, other portions of those same nodes may not be. In an effort to be "cautiously optimistic" the nodes will be checked again. It was nice to have a few days of not worrying about that.
If the nodes are clear after the additional biopsies, it is possible that the oncologist will not prescribe chemo. However, Mike will need to have some genetic testing in the near future to find out if he is carrying a virus that makes him more susceptible to colon cancer. If that's the case, chemo won't make a bit of difference and we'll be talking about other options like a complete colectomy to make sure Mike can remain cancer free.
Just when it seems we have this thing figured out and come to terms with one aspect of it, something else pops up. On the up side, Mike is feeling quite a bit better. Still tired, but has started on the iron supplements again so hopefully he can start rebuilding some of the iron stores his body used up before all of this started.
Sunday, July 18, 2010
Just another day
Being home is finally hitting Mike. He is worn out and has acknowledged that his body needs to rest. Sleep seems to be the best thing at this point. We went to church this morning and it happened to be outdoors at the park. There was a potluck afterwards, but we came home instead. Just the service was enough for today. I never know just how long to let him sleep. Although, he doesn't seem to be having trouble sleeping at night even with a couple of naps during the day.
The kids are having a bit of a hard time with Daddy being home, but not available. That gets rough on me too. Trying to keep the kids quiet so Mike can sleep when they are indoors, because it is too hot & humid for them to be outside for long, is a challenge. I struggle with calling someone to see if the kids can go over there with feeling like I need to be with the kids instead. Tomorrow through Thursday they will both go to VBS in the morning , so that will help some. At some point I also need to get back to work for awhile to catch up.
I am, however, looking forward to Thursday. Maureen, Michelle & I planned a long weekend several months ago. Non-refundable, of course. At this point the plan is for Mike to stay home and I'll drop the kids off at grandma & grandpa's on the way south. A quiet weekend at home for Mike and a weekend away for me.
I wonder if guilt or relief will be the stronger feeling. Will I feel guilty if I'm relieved to be away? Can I pretend cancer doesn't exist for three days? Sometimes I just feel lost in the middle of all the craziness that is hiding behind the normal.
The kids are having a bit of a hard time with Daddy being home, but not available. That gets rough on me too. Trying to keep the kids quiet so Mike can sleep when they are indoors, because it is too hot & humid for them to be outside for long, is a challenge. I struggle with calling someone to see if the kids can go over there with feeling like I need to be with the kids instead. Tomorrow through Thursday they will both go to VBS in the morning , so that will help some. At some point I also need to get back to work for awhile to catch up.
I am, however, looking forward to Thursday. Maureen, Michelle & I planned a long weekend several months ago. Non-refundable, of course. At this point the plan is for Mike to stay home and I'll drop the kids off at grandma & grandpa's on the way south. A quiet weekend at home for Mike and a weekend away for me.
I wonder if guilt or relief will be the stronger feeling. Will I feel guilty if I'm relieved to be away? Can I pretend cancer doesn't exist for three days? Sometimes I just feel lost in the middle of all the craziness that is hiding behind the normal.
Saturday, July 17, 2010
It's starting to catch up
I'm tired. That about sums it up. Obviously, it's been a long week for everyone involved. I am grateful beyond belief to my parents and mother-in-law for taking care of the kids all week, to our friends for the visits, lawn mowing & meals that have been delivered. But, I'm really, really tired - both emotionally & physically.
Last night was our annual church camp-out. Cal wanted to camp so much and was really upset about the idea of not getting to sleep in the tent. Mike was obviously not going to be able to camp, but wanted to at least go and visit for awhile for a change of scenery. In the end I stayed with both kids & Mike and his mom went back home. I think Cal really needed to do something different to keep his mind off everything that's been going on. He's worried now about Mike having the staples removed.
I like camping, hanging out with friends, sleeping in the tent, etc. But, last night it was hot & sticky, the group site a bit up the hill from ours was up until 3am having a great time and I had another night of not getting much sleep.
I feel like I'm just complaining now, but I'm ready to get on with things already. Mike is healing slowly - mostly because he can't stand to "look sick" so is trying to do too much so he doesn't feel like he is sick.
Mike's dad will be here today to pick up his mom. Not sure yet if they will go home today or tomorrow. Again, we couldn't have done this without family here and I don't want anyone to take it the wrong way, but honestly, I'm ready for it to just be the four of us again.
I know we still have a long road ahead of us and we'll get through that too, but until we see the oncologist on the 27th maybe we can pretend to just be a normal family dealing with normal, everyday stuff like kids fighting & dogs barking instead of this cancer thing.
Last night was our annual church camp-out. Cal wanted to camp so much and was really upset about the idea of not getting to sleep in the tent. Mike was obviously not going to be able to camp, but wanted to at least go and visit for awhile for a change of scenery. In the end I stayed with both kids & Mike and his mom went back home. I think Cal really needed to do something different to keep his mind off everything that's been going on. He's worried now about Mike having the staples removed.
I like camping, hanging out with friends, sleeping in the tent, etc. But, last night it was hot & sticky, the group site a bit up the hill from ours was up until 3am having a great time and I had another night of not getting much sleep.
I feel like I'm just complaining now, but I'm ready to get on with things already. Mike is healing slowly - mostly because he can't stand to "look sick" so is trying to do too much so he doesn't feel like he is sick.
Mike's dad will be here today to pick up his mom. Not sure yet if they will go home today or tomorrow. Again, we couldn't have done this without family here and I don't want anyone to take it the wrong way, but honestly, I'm ready for it to just be the four of us again.
I know we still have a long road ahead of us and we'll get through that too, but until we see the oncologist on the 27th maybe we can pretend to just be a normal family dealing with normal, everyday stuff like kids fighting & dogs barking instead of this cancer thing.
Thursday, July 15, 2010
Are you kidding?
All along we have had so many people praying for us. Family, friends, people we barely know & people we have never even met from all around the country. There is a lot talked about regarding the "power of prayer". I guess now we can add to those stories...
So, I go home to take a shower after talking to the docs at the hospital when Mike calls. I'm thinking, I haven't been gone that long, but maybe he's already been discharged. Instead, Mike tells me that Dr Dachman just called to tell him that of the 30 lymph nodes that were removed on Monday every last one came back clear! Are you kidding me?!?! I told Mike I would be right there. I grabbed my purse & sunglasses and told my mother-in-law I was heading back. She asked, "without drying your hair?" Yup. And I was outta there. Fortunately, the hospital is only about 2 minutes from the house so I make it no time. Park, speed walk through the lobby, run up the stairs and speed walk down the hall to the "family lounge" at the end of the hall. Mike is sitting there grinning at me.
On June 25 when Dr Dachman said, "I'm sorry, Mike, but you have colon cancer" my world turned upside down with disbelief. In that other sentence from Mike, "All 30 nodes were clear", there is another feeling of disbelief. I MUCH prefer this one.
It's weird how two completely unexpected announcements can have a similar yet so incredibly different effect. Shock, disbelief & fear vs. shock, disbelief & hope.
Two oncologists, the surgeon, our doctor and both of us believed the lymph nodes were involved. This thing had been growing for 3-5 years, several nodes were swollen on the CT scan, enlarged and hard when Dr Dachman held them after removing them, yet when biopsied were clean. Lymphatic involvement was so certain that the Power Port for chemo had been installed during surgery.
That said, it doesn't mean this story is over. There was the polyp that tested positive, which was located in the lower part of Mike's colon. Ideally, all of it was removed on June 25, but there just really isn't anyway to be positive of that.
On July 27 we will meet with the oncologist to determine where we go from here. Could be that we do nothing, could be oral chemo or it could be the regular chemo we were prepared for already. Honestly, we're more afraid of doing nothing than of Mike having traditional chemo. If we do nothing & there is even one cell left hiding somewhere, it will likely continue to grow. However, if we go ahead with chemo we will be able to kill anything that might still be hiding out. Using chemo proactively feels much less threatening that having to use chemo to save your life.
Earlier on in this adventure I hoped I would be strong enough to handle all of this. Obviously, there were moments, even days, of feeling frustrated, afraid, etc. Honestly, overall it hasn't seemed as difficult as I imagined it would be. I'm not sure what that says about me, but I just did what I wanted and needed to do. Of course I had a TON of help from my parents & my in-laws & friends, not to mention the emotional support & a husband with the most positive attitude & best sense of humor of anyone else I know.
On Monday we'll go back to see Dr Dachman so Mike can have the staples removed. Until then the challenge will be for him to be able to rest when he needs to and to manage the pain. More than anything we are both looking forward to a much deserved good night's sleep.
He really IS going to be OK.
So, I go home to take a shower after talking to the docs at the hospital when Mike calls. I'm thinking, I haven't been gone that long, but maybe he's already been discharged. Instead, Mike tells me that Dr Dachman just called to tell him that of the 30 lymph nodes that were removed on Monday every last one came back clear! Are you kidding me?!?! I told Mike I would be right there. I grabbed my purse & sunglasses and told my mother-in-law I was heading back. She asked, "without drying your hair?" Yup. And I was outta there. Fortunately, the hospital is only about 2 minutes from the house so I make it no time. Park, speed walk through the lobby, run up the stairs and speed walk down the hall to the "family lounge" at the end of the hall. Mike is sitting there grinning at me.
On June 25 when Dr Dachman said, "I'm sorry, Mike, but you have colon cancer" my world turned upside down with disbelief. In that other sentence from Mike, "All 30 nodes were clear", there is another feeling of disbelief. I MUCH prefer this one.
It's weird how two completely unexpected announcements can have a similar yet so incredibly different effect. Shock, disbelief & fear vs. shock, disbelief & hope.
Two oncologists, the surgeon, our doctor and both of us believed the lymph nodes were involved. This thing had been growing for 3-5 years, several nodes were swollen on the CT scan, enlarged and hard when Dr Dachman held them after removing them, yet when biopsied were clean. Lymphatic involvement was so certain that the Power Port for chemo had been installed during surgery.
That said, it doesn't mean this story is over. There was the polyp that tested positive, which was located in the lower part of Mike's colon. Ideally, all of it was removed on June 25, but there just really isn't anyway to be positive of that.
On July 27 we will meet with the oncologist to determine where we go from here. Could be that we do nothing, could be oral chemo or it could be the regular chemo we were prepared for already. Honestly, we're more afraid of doing nothing than of Mike having traditional chemo. If we do nothing & there is even one cell left hiding somewhere, it will likely continue to grow. However, if we go ahead with chemo we will be able to kill anything that might still be hiding out. Using chemo proactively feels much less threatening that having to use chemo to save your life.
Earlier on in this adventure I hoped I would be strong enough to handle all of this. Obviously, there were moments, even days, of feeling frustrated, afraid, etc. Honestly, overall it hasn't seemed as difficult as I imagined it would be. I'm not sure what that says about me, but I just did what I wanted and needed to do. Of course I had a TON of help from my parents & my in-laws & friends, not to mention the emotional support & a husband with the most positive attitude & best sense of humor of anyone else I know.
On Monday we'll go back to see Dr Dachman so Mike can have the staples removed. Until then the challenge will be for him to be able to rest when he needs to and to manage the pain. More than anything we are both looking forward to a much deserved good night's sleep.
He really IS going to be OK.
Home Sweet Home
Although we are still at the hospital, Mike has been given the go ahead to be released today! One day earlier than the original estimate. It will be nice to leave this part of the journey behind us, although in some ways it will be more difficult at home.
The kids will be so happy to have Mike home - the dogs will be a pain in the neck. Kona has been missing me and both she & Payton will be excited and none too happy to banished to the backyard or basement when we first get home.
Furniture will be rearranged a bit so Mike can be as comfortable as possible & I imagine the kids will need to be kept busy this afternoon.
We know that our lawn was mowed yesterday by David & Louis (thank you!) and Maureen provided dinner last night (thank you!) and dinner will again be provided tonight, and the night after that, and the night after that, etc. One of the first things I need to do when I get home is make room in our freezer as we are about to be, once again, overwhelmed (in a good way) by the generosity of others.
Yesterday Cal told me he wants to be able to crawl in bed with us and cuddle again. Me too.
Dr Dachman gave Mike the go-ahead to resume regular activity. Really no major restrictions. It's crazy, the guy had two feet of colon removed and he has no restrictions as far as diet is concerned. As long as Mike chews everything really well, there should be no problems. I guess Doc assumes that Mike has at least some common sense when it comes to deciding what to eat or not.
Driving is fine once Mike is confident he can slam on the breaks if necessary. No lifting more than 25-30 pounds for now and all other physical activity can be done "at Mike's discretion". Basically, listen to your body. The human body is absolutely amazing in its ability to repair itself.
Staples (we counted at least 19) will come out on Tuesday and we should have the oncology report then as well. That's the last bit of information we need before moving forward with making a plan for chemo.
The kids will be so happy to have Mike home - the dogs will be a pain in the neck. Kona has been missing me and both she & Payton will be excited and none too happy to banished to the backyard or basement when we first get home.
Furniture will be rearranged a bit so Mike can be as comfortable as possible & I imagine the kids will need to be kept busy this afternoon.
We know that our lawn was mowed yesterday by David & Louis (thank you!) and Maureen provided dinner last night (thank you!) and dinner will again be provided tonight, and the night after that, and the night after that, etc. One of the first things I need to do when I get home is make room in our freezer as we are about to be, once again, overwhelmed (in a good way) by the generosity of others.
Yesterday Cal told me he wants to be able to crawl in bed with us and cuddle again. Me too.
Dr Dachman gave Mike the go-ahead to resume regular activity. Really no major restrictions. It's crazy, the guy had two feet of colon removed and he has no restrictions as far as diet is concerned. As long as Mike chews everything really well, there should be no problems. I guess Doc assumes that Mike has at least some common sense when it comes to deciding what to eat or not.
Driving is fine once Mike is confident he can slam on the breaks if necessary. No lifting more than 25-30 pounds for now and all other physical activity can be done "at Mike's discretion". Basically, listen to your body. The human body is absolutely amazing in its ability to repair itself.
Staples (we counted at least 19) will come out on Tuesday and we should have the oncology report then as well. That's the last bit of information we need before moving forward with making a plan for chemo.
Wednesday, July 14, 2010
Determination
Morning
I'm not even sure where to start in regard to my admiration and respect for Mike. His determination is inspiring and makes me want to be a stronger person. I've been in love with Mike for half of my life and it is because of him that I am he person I am today.
Recovering from this surgery has been anything but glamorous, but Mike does it all with the the good humor, that anyone who knows him, appreciates. Sometimes when a person is in a situation like this, no matter how laid back they usually are, the boredom, indignity, and dependence can be more than they can take. So far, Mike continues to remain upbeat, joking with the nurses and just taking things as they go.
The nurses are happy to have Mike as their patient. He doesn't complain, does as much as he can on his own, was up walking sooner than expected & apologizes when his body does something that is out of his control (a recently resectioned bowel can be a bit temperamental).
I am so grateful (I seem to be using that word a lot lately) that our parents are able to watch the kids so I am able to spend so much time with Mike. I hope he isn't getting sick of me. LOL
Afternoon
For lunch Mike actually had what resembled a chicken breast & mashed potatoes. After seeing Dr Dachman this morning & finally having the foley removed (Yeah!!) we were told that Mike is doing "exceptionally well" and if pain can be managed by taking the pain meds orally he may be able to go home tomorrow. Just shows what prayers, determination & more prayers can do.
I'm not even sure where to start in regard to my admiration and respect for Mike. His determination is inspiring and makes me want to be a stronger person. I've been in love with Mike for half of my life and it is because of him that I am he person I am today.
Recovering from this surgery has been anything but glamorous, but Mike does it all with the the good humor, that anyone who knows him, appreciates. Sometimes when a person is in a situation like this, no matter how laid back they usually are, the boredom, indignity, and dependence can be more than they can take. So far, Mike continues to remain upbeat, joking with the nurses and just taking things as they go.
The nurses are happy to have Mike as their patient. He doesn't complain, does as much as he can on his own, was up walking sooner than expected & apologizes when his body does something that is out of his control (a recently resectioned bowel can be a bit temperamental).
I am so grateful (I seem to be using that word a lot lately) that our parents are able to watch the kids so I am able to spend so much time with Mike. I hope he isn't getting sick of me. LOL
Afternoon
For lunch Mike actually had what resembled a chicken breast & mashed potatoes. After seeing Dr Dachman this morning & finally having the foley removed (Yeah!!) we were told that Mike is doing "exceptionally well" and if pain can be managed by taking the pain meds orally he may be able to go home tomorrow. Just shows what prayers, determination & more prayers can do.
Tuesday, July 13, 2010
Up & Moving
Epidural is gone and Mike walked the halls a little. He's sleeping again, which is what he needs. Turns out insomnia is common for someone of Mike's age, fitness level & health that goes through this type of surgery. Tonight he'll get Ambien to help him sleep & I brought the ear plugs. Funny how you are supposed to rest as much as you can so the well meaning nurses can disturb you every 90 minutes.
Speaking of nurses, they have all been great. I'm not just saying that because I happen to be friends with two of them either.
Kids are doing better today now that they've seen Mike a couple of times. Zoey was a bit quieter than usual when I went home to get cleaned up, but overall they're having fun with their grandparents.
Not a whole lot for me to do here, but I don't want to be anywhere else. Knowing the kids are taken care of lifts a huge weight. I can focus my energy on Mike and making sure he gets what he needs. Even in a small hospital things come up and he may not be high on the list of priorities. As awful as it sounds, it just means there is someone else worse off than he is.
Speaking of nurses, they have all been great. I'm not just saying that because I happen to be friends with two of them either.
Kids are doing better today now that they've seen Mike a couple of times. Zoey was a bit quieter than usual when I went home to get cleaned up, but overall they're having fun with their grandparents.
Not a whole lot for me to do here, but I don't want to be anywhere else. Knowing the kids are taken care of lifts a huge weight. I can focus my energy on Mike and making sure he gets what he needs. Even in a small hospital things come up and he may not be high on the list of priorities. As awful as it sounds, it just means there is someone else worse off than he is.
Long Night
Not much sleep last night. Actually, I slept more than Mike did. For a guy that can fall asleep on the couch by 8 on any given night, it's rough to see him not be able to sleep even though he needs & wants to. The big issue is that he hasn't been able to move. He had an oxygen tube, IV, epidural & catheter. Plus the epidural has made his entire right side and leg numb, so he wouldn't have been able to stand even if the nurses would have let him.
Finally around midnight, he was able to stop using the oxygen. His O2 levels have remained in the mid-upper 90's so it looks like we're past that. This morning, Jeff, the anesthesiologist adjusted the epidural down to 5 from 8, but Mike also has a manual pump he can use for a boost if he needs it. Hopefully, that will bring back the rest of feeling in his right leg. It came back gradually over the night, but he probably still couldn't put weight on it if he tried.
Mike's first goal today (aside from actually drinking something) is to have the catheter removed. Now that feeling is coming back into his upper legs he's also feeling that a bit more and claims it isn't comfortable. Hmmm, what a surprise! So, hopefully he can get enough feeling back in both legs to get up and walk to the bathroom and get rid of that. Although, the kids seemed pretty fascinated by it.
Docs should be in later this morning to do rounds. This will be the first time Mike will have spoken to them since before surgery. Will be good to get more information and hear again what was told to me yesterday. I can't get out of my head the statistic Dr Dachman mentioned yesterday following surgery concerning 5 and 10 year survival rates for situations similar to Mike's. I appreciate the honesty, but it's not something I want to think about. Sometimes denial is good.
Finally around midnight, he was able to stop using the oxygen. His O2 levels have remained in the mid-upper 90's so it looks like we're past that. This morning, Jeff, the anesthesiologist adjusted the epidural down to 5 from 8, but Mike also has a manual pump he can use for a boost if he needs it. Hopefully, that will bring back the rest of feeling in his right leg. It came back gradually over the night, but he probably still couldn't put weight on it if he tried.
Mike's first goal today (aside from actually drinking something) is to have the catheter removed. Now that feeling is coming back into his upper legs he's also feeling that a bit more and claims it isn't comfortable. Hmmm, what a surprise! So, hopefully he can get enough feeling back in both legs to get up and walk to the bathroom and get rid of that. Although, the kids seemed pretty fascinated by it.
Docs should be in later this morning to do rounds. This will be the first time Mike will have spoken to them since before surgery. Will be good to get more information and hear again what was told to me yesterday. I can't get out of my head the statistic Dr Dachman mentioned yesterday following surgery concerning 5 and 10 year survival rates for situations similar to Mike's. I appreciate the honesty, but it's not something I want to think about. Sometimes denial is good.
Monday, July 12, 2010
Post-Surgery
That step is over! Mike is resting comfortably with the help of REALLY good narcotics given through an epidural. Probably good the meds are disbursed on a timer, otherwise he may want to tough it out with the pain.
We arrived at 7:30 this morning and at 10:00 he was taken to the OR. Upland Hills is awesome. I was called at 10:40 and told that the incision was just made. I was called again half-way through the procedure and told that the resection was taking place. I was called yet again to be told that the resection was complete and the port was being installed. Not long after that last call, Dr Kramer, who had been assisting, came out to talk to us. He looked relaxed, which was a really good sign. Especially considering how haggard he looked the last time we talked to him at the hospital following the diagnosis.
Surgery was textbook. Dr Dachman removed about 2 feet of colon and all of the surrounding lymph nodes he could find. I was relieved to hear that the cancer had NOT spread to the surrounding organs- Thank God. However, the lymph nodes are involved, which we had pretty much figured. Until the biopsy, however, we won't know how many are cancerous.
After Dr Kramer left it was as if whatever was keeping me detached disappeared. I was so relieved that the surgery had no complications and that no other organs were attacked it was all I could do to keep from sobbing.
When Dr Dachman finally came out, he gave me a picture of the section of colon that was removed. Right in the middle is that ugly, ugly mess of cells that caused all of this upheaval. I'm thinking we should make copies and use them as target practice. Or, maybe we'll just use the picture as our Christmas card this year. LOL
We had planned on waiting until tomorrow afternoon to have the kids visit Mike, but he's feeling well enough and doesn't have the nose tube so my parents are bringing them by for a quick visit. I think he needs to see them as much as they want to see him.
I'm spending the night at the hospital tonight and know the kids are in good hands with their grandparents.
Thank you to Pastor Todd, Maureen, Michelle, Carl, Mom & Dad, Ma & Dad, Cal & Zoey for coming to visit or stay with me during the surgery.
I will continue to update as we find out more info and as Mike progresses. He may even get to eat jello for breakfast tomorrow - Whoo Hoo!
Mike needed to up his pain meds a bit. The epidural is working well for the area surrounding the incision, but just above that and where the port is was starting to bother him. Lacey, his nurse gave him some different meds in his IV and after about a half hour he was starting to feel better. I found that if I ask him if he can breathe regularly rather than shallow it's a good judge on whether or not he needs increased pain control.
Mike was also given caffeine in an IV before and after surgery to help combat any caffeine withdrawal type headaches. Unfortunately, because of that he isn't too inclined to sleep so has been awake since coming out of surgery at 2. Hopefully, he'll be able to sleep through the night. Well, as much as you can when you get your vitals checked every half hour.
We arrived at 7:30 this morning and at 10:00 he was taken to the OR. Upland Hills is awesome. I was called at 10:40 and told that the incision was just made. I was called again half-way through the procedure and told that the resection was taking place. I was called yet again to be told that the resection was complete and the port was being installed. Not long after that last call, Dr Kramer, who had been assisting, came out to talk to us. He looked relaxed, which was a really good sign. Especially considering how haggard he looked the last time we talked to him at the hospital following the diagnosis.
Surgery was textbook. Dr Dachman removed about 2 feet of colon and all of the surrounding lymph nodes he could find. I was relieved to hear that the cancer had NOT spread to the surrounding organs- Thank God. However, the lymph nodes are involved, which we had pretty much figured. Until the biopsy, however, we won't know how many are cancerous.
After Dr Kramer left it was as if whatever was keeping me detached disappeared. I was so relieved that the surgery had no complications and that no other organs were attacked it was all I could do to keep from sobbing.
When Dr Dachman finally came out, he gave me a picture of the section of colon that was removed. Right in the middle is that ugly, ugly mess of cells that caused all of this upheaval. I'm thinking we should make copies and use them as target practice. Or, maybe we'll just use the picture as our Christmas card this year. LOL
We had planned on waiting until tomorrow afternoon to have the kids visit Mike, but he's feeling well enough and doesn't have the nose tube so my parents are bringing them by for a quick visit. I think he needs to see them as much as they want to see him.
I'm spending the night at the hospital tonight and know the kids are in good hands with their grandparents.
Thank you to Pastor Todd, Maureen, Michelle, Carl, Mom & Dad, Ma & Dad, Cal & Zoey for coming to visit or stay with me during the surgery.
I will continue to update as we find out more info and as Mike progresses. He may even get to eat jello for breakfast tomorrow - Whoo Hoo!
Mike needed to up his pain meds a bit. The epidural is working well for the area surrounding the incision, but just above that and where the port is was starting to bother him. Lacey, his nurse gave him some different meds in his IV and after about a half hour he was starting to feel better. I found that if I ask him if he can breathe regularly rather than shallow it's a good judge on whether or not he needs increased pain control.
Mike was also given caffeine in an IV before and after surgery to help combat any caffeine withdrawal type headaches. Unfortunately, because of that he isn't too inclined to sleep so has been awake since coming out of surgery at 2. Hopefully, he'll be able to sleep through the night. Well, as much as you can when you get your vitals checked every half hour.
Sunday, July 11, 2010
Tomorrow
Tomorrow is the day. The first day of the rest of our lives, right? I honestly don't know how I feel right now. I think maybe it just doesn't seem real, I don't know. I usually have a lot of feelings one way or another, but tonight I just feel kind of empty. I imagine tomorrow will be a different story.
I worry about the kids, Cal especially. I know he's having a rough time and I hope he can be distracted enough by his grandparents. Selfishly, I only want to be with Mike. I don't want any other responsibilities right now. I am beyond blessed to have parents & in-laws that are spending the week with me in order to take care of Cal & Zoey.
It'll be interesting to see what tomorrow brings. What the doctors will find once they get in there. At this stage of the war that's still an unknown. Based on x-rays and CT scans Mike's lungs and liver look clear, we're banking on that being the case once Dr Dachman digs around.
Time to wrap it up, get my kids in bed & spend some quality time with Mike. He's been nauseous most of the day because of the super-antibiotics he has to take to "sterilize" his colon. I just kind of see it as a taste of what's to come once the chemo starts, I guess.
I worry about the kids, Cal especially. I know he's having a rough time and I hope he can be distracted enough by his grandparents. Selfishly, I only want to be with Mike. I don't want any other responsibilities right now. I am beyond blessed to have parents & in-laws that are spending the week with me in order to take care of Cal & Zoey.
It'll be interesting to see what tomorrow brings. What the doctors will find once they get in there. At this stage of the war that's still an unknown. Based on x-rays and CT scans Mike's lungs and liver look clear, we're banking on that being the case once Dr Dachman digs around.
Time to wrap it up, get my kids in bed & spend some quality time with Mike. He's been nauseous most of the day because of the super-antibiotics he has to take to "sterilize" his colon. I just kind of see it as a taste of what's to come once the chemo starts, I guess.
Saturday, July 10, 2010
Up and Down - Again
I hate, hate, hate the ups and downs of this stupid thing. Yesterday was a great day, the cancer didn't seem to be the main focus of the day. Sure, it was there. Because of it we went tubing & had a great family day. Would we have done that if cancer wasn't a part of our current lives? No, Mike & I would have both been at work yesterday and the kids with their sitter. Am I grateful for yesterday? Absolutely. Do I wish it had just been a normal Friday? I don't know.
How can I be grateful and hate it at the same time?
The fear is back today too. I don't want to focus my energy on that, but sometimes it's SO hard not to. The day after tomorrow is surgery. I'm afraid of what else they will find, I'm afraid of the worst. I'm afraid of what our future will be. I'm afraid I won't be as strong as I need to be for Mike and the kids. I much prefer the days when hope is stronger than fear.
I tell my kids not to use the word hate. It's an ugly word and it's hurtful - just like cancer.
Not five minutes after I posted this, I ended up sitting on the floor rocking my son in my arms and crying as he cried & yelled at God and blamed God for Daddy needing to have surgery. I know how he feels.
Mike posted on his FB page: "God's role in my disease is difficult for an adult mind to grasp. It is impossible for a 6 year old. We tell our kids that God is present in our lives but we also say he is not to blame. God is the cure not the cancer, the doctors not the diagnosis, the healing not the hurt. Cal is tearfully angry today but has nowhere to direct the anger. Zoey is just happy to have a new bracelet. I wish I was 4 years old."
How can I be grateful and hate it at the same time?
The fear is back today too. I don't want to focus my energy on that, but sometimes it's SO hard not to. The day after tomorrow is surgery. I'm afraid of what else they will find, I'm afraid of the worst. I'm afraid of what our future will be. I'm afraid I won't be as strong as I need to be for Mike and the kids. I much prefer the days when hope is stronger than fear.
I tell my kids not to use the word hate. It's an ugly word and it's hurtful - just like cancer.
Not five minutes after I posted this, I ended up sitting on the floor rocking my son in my arms and crying as he cried & yelled at God and blamed God for Daddy needing to have surgery. I know how he feels.
Mike posted on his FB page: "God's role in my disease is difficult for an adult mind to grasp. It is impossible for a 6 year old. We tell our kids that God is present in our lives but we also say he is not to blame. God is the cure not the cancer, the doctors not the diagnosis, the healing not the hurt. Cal is tearfully angry today but has nowhere to direct the anger. Zoey is just happy to have a new bracelet. I wish I was 4 years old."
Friday, July 9, 2010
Great Family Day
Just returned from tubing down the Wisconsin River with Mike & the kids. Couldn't have asked for a more beautiful day. It's too bad we don't have more time in everyday life to just have a play day for no reason. Mike said it's been a pretty nice two week vacation since getting the diagnosis. It was important to him to spend time with us while he still feels good before the surgery. Tonight the kids get to stay home with a sitter (thank you Emily!) and Mike & I are headed to the Comedy Club to spend a couple of hours laughing instead of worrying. All in all a really good day.
I love my family & I love our life together.
I love my family & I love our life together.
Thursday, July 8, 2010
A Plan
Yesterday, for the first time in two weeks, I actually felt hungry. I also slept through the night last night. I think knowing what the next step is at least puts some order to all of this chaos.
The other day Mike came across a website http://www.colonclub.com/ - it's a site geared towards people diagnosed at a younger age than is typical. There is a message board/forum as well. I have to say, I love it! Mike probably won't register with the site (he's just fine getting his support from people he already has a relationship with), but in less than 24 hours I had 14 responses to my post as a newbie. Have I said before how amazing it is to have so much support? My theory is that I can never get enough information to really be satisfied. And, if I can get first hand info from people currently going through diagnosis & treatment as well as from their support people - all the better.
My sister-in-law, Colleen, is organizing a group for the "Get Your Rear in Gear" 5K in Tinley Park, IL. The run is July 25 - so they're moving quickly. We won't be able to go this time, but I'm planning next fall in 2011 when Milwaukee holds the event.
Today is a good day.
The other day Mike came across a website http://www.colonclub.com/ - it's a site geared towards people diagnosed at a younger age than is typical. There is a message board/forum as well. I have to say, I love it! Mike probably won't register with the site (he's just fine getting his support from people he already has a relationship with), but in less than 24 hours I had 14 responses to my post as a newbie. Have I said before how amazing it is to have so much support? My theory is that I can never get enough information to really be satisfied. And, if I can get first hand info from people currently going through diagnosis & treatment as well as from their support people - all the better.
My sister-in-law, Colleen, is organizing a group for the "Get Your Rear in Gear" 5K in Tinley Park, IL. The run is July 25 - so they're moving quickly. We won't be able to go this time, but I'm planning next fall in 2011 when Milwaukee holds the event.
Today is a good day.
Wednesday, July 7, 2010
One more day
Noon
After our emotionally draining day yesterday, I woke up today feeling more sad than angry. Sad that Mike has to go through this, sad that the kids will have to go through it. Each day we get closer to surgery, the closer Cal & Zoey come to having their world tipped over. I can't imagine this won't have some kind of effect on them. I hope though, when this nightmare is over, they won't remember most of it.
We have an appointment with a counselor today. I made the appointment right after Mike's diagnosis not knowing if we would need it or not. After some back and forth, Cal decided he doesn't want to go. The pull of riding a scooter at his friend's house is just too strong. As far as I'm concerned right now, that's a good thing. Why should we force him to go? We have been open and honest with the kids from the start - no secrets. After next week maybe he'll change his mind. Cal likes Laura and she was a huge help to him in getting rid of the "worry monster" that showed up after Mike's truck accident.
We'll see how it goes today. I honestly think we're doing OK so far in regard to talking to each other about it and involving our friends, accepting help, etc. I also know that there can be a very fine line between having your act together and losing it completely. I figure talking to Laura sure can't hurt at this point.
After our emotionally draining day yesterday, I woke up today feeling more sad than angry. Sad that Mike has to go through this, sad that the kids will have to go through it. Each day we get closer to surgery, the closer Cal & Zoey come to having their world tipped over. I can't imagine this won't have some kind of effect on them. I hope though, when this nightmare is over, they won't remember most of it.
We have an appointment with a counselor today. I made the appointment right after Mike's diagnosis not knowing if we would need it or not. After some back and forth, Cal decided he doesn't want to go. The pull of riding a scooter at his friend's house is just too strong. As far as I'm concerned right now, that's a good thing. Why should we force him to go? We have been open and honest with the kids from the start - no secrets. After next week maybe he'll change his mind. Cal likes Laura and she was a huge help to him in getting rid of the "worry monster" that showed up after Mike's truck accident.
We'll see how it goes today. I honestly think we're doing OK so far in regard to talking to each other about it and involving our friends, accepting help, etc. I also know that there can be a very fine line between having your act together and losing it completely. I figure talking to Laura sure can't hurt at this point.
Tuesday, July 6, 2010
Anger & Faith
So, right now I'm mostly angry. Angry enough that I want to scream, throw something, break something, you get the idea. Problem is there is no one to actually be angry with and THAT makes me angry. I don't blame anyone, I don't blame God. God is the one who will help us get through this ugly mess. I'm not focusing on the "what if we had..." or "if only...". None of that matters one bit and there's no sense focusing energy on that kind of crap. Right now I need to work on turning this angry energy into something more positive. Maybe tomorrow I'll figure out how to do that. For tonight though, I think I need to just be OK with the fact I'm angry.
Enough of that. Here's what we found out today when we saw Dr Dachman. Yep, Mike has cancer - no surprise there. The oncologist also said it looks as though the lymph nodes are likely involved. Again, no surprise. That means we're looking at Stage 3 colon cancer. What we weren't really prepared for though, was finding out that the polyp that had been removed also appears to be cancerous. We had guessed the polyp had been removed from roughly the same area as the main tumor. Unfortunately, it was removed from the lower sigmoid colon. Essentially, Mike had two seperate cancers in his colon - one at each end. When the polyp was removed, the cancer from that area was also likely removed. Although there is no way to know that for sure at this point in time.
Now comes another bizarre twist - If the lymph nodes had appeared to be clear on the x-ray & CT, the suggested course of action would have been to remove the entire colon. By removing the entire colon - all of the cancer would also be removed. However, because it is highly likely that the lymph nodes ARE involved, he is only having the orginally planned right hemi-coloectomy. With the lymph nodes involved chemo is a definite reality. If they weren't involved, then chemo would not necessarily be a part of the treatment. The plan is that the chemo will not only attack any damaged lymph nodes, but also any remaining cancer cells from the site of the polyp. So...take your pick A) you have to get chemo but also get to keep half of your colon or B) No chemo, but you lose your entire colon & have to change your lifestyle to be within arms reach of a bathroom for a very long time. Not an easy decision when actually faced with it.
Surgery will be open as opposed to laparoscopic. Dr Dachman wants to be able to see and feel everything including the surrounding organs and lymph nodes to be sure they don't miss anything. If anything looks suspicious, it comes out. Fine with me.
During the surgery on Monday a "Power Port" will be inserted under Mike's collar bone. This will enable him to have, as he puts it, "drive through chemo". We don't know a lot about it at this point, but it sounds as though he'll be able to do more at home rather than sitting at the hospital for treatment.
Following surgery Mike will be in the hospital for 4-6 days. He gets an epidural that will last up to 36 hours (lucky guy), but he also gets a catheter (sorry, trying not to laugh). We've decided after talking to Dr Dachman that we won't have the kids visit until Tuesday. Monday he'll be out of it for the most part anyway so there's no point in getting the kids upset about Daddy being "sick".
Mike asked the doc how long it would have been before he would have been obviously sick enough to see someone if it hadn't been for his failed PT run. Dr Dachman said within 90 days he would have known he needed to see a doctor. By Christmas his liver would be fully metastasized. And by this time next year, he wouldn't be with us.
There may be some people who wonder why God lets things like this happen. Mike lives right, eats relatively healthy, is active, doesn't fit the 50 years and up demographic, and is a good person. Up until now, I've always thought that it isn't God who "lets" things like this happen, faith in God is the reason we can get through the worst of the worst. I haven't changed my mind on that one. Even with as bad as it might get over the next year, I HAVE to believe that God will help us through this. I see God in so many things. The relationship we have with our primary doctor & the surgeon, the friends who have jumped in to help us when we may not even know what help we need, our family who has always stood by us and will continue to stand by us even if they are hundreds or thousands of miles away.
Thank you to Pastor Todd for introducing me to this song:
"Holy Now" by Peter Mayer
When I was a boy, each week
On Sunday, we would go to church
And pay attention to the priest
He would read the holy word
And consecrate the holy bread
And everyone would kneel and bow
Today the only difference is
Everything is holy now
Everything, everything
Everything is holy now
When I was in Sunday school
We would learn about the time
Moses split the sea in two
Jesus made the water wine
And I remember feeling sad
That miracles don’t happen still
But now I can’t keep track
‘Cause everything’s a miracle
Everything, Everything
Everything’s a miracle
Wine from water is not so small
But an even better magic trick
Is that anything is here at all
So the challenging thing becomes
Not to look for miracles
But finding where there isn’t one
When holy water was rare at best
It barely wet my fingertips
But now I have to hold my breath
Like I’m swimming in a sea of it
It used to be a world half there
Heaven’s second rate hand-me-down
But I walk it with a reverent air
‘Cause everything is holy now
Everything, everything
Everything is holy now
Read a questioning child’s face
And say it’s not a testament
That’d be very hard to say
See another new morning come
And say it’s not a sacrament
I tell you that it can’t be done
This morning, outside I stood
And saw a little red-winged bird
Shining like a burning bush
Singing like a scripture verse
It made me want to bow my head
I remember when church let out
How things have changed since then
Everything is holy now
It used to be a world half-there
Heaven’s second rate hand-me-down
But I walk it with a reverent air
‘Cause everything is holy now
Enough of that. Here's what we found out today when we saw Dr Dachman. Yep, Mike has cancer - no surprise there. The oncologist also said it looks as though the lymph nodes are likely involved. Again, no surprise. That means we're looking at Stage 3 colon cancer. What we weren't really prepared for though, was finding out that the polyp that had been removed also appears to be cancerous. We had guessed the polyp had been removed from roughly the same area as the main tumor. Unfortunately, it was removed from the lower sigmoid colon. Essentially, Mike had two seperate cancers in his colon - one at each end. When the polyp was removed, the cancer from that area was also likely removed. Although there is no way to know that for sure at this point in time.
Now comes another bizarre twist - If the lymph nodes had appeared to be clear on the x-ray & CT, the suggested course of action would have been to remove the entire colon. By removing the entire colon - all of the cancer would also be removed. However, because it is highly likely that the lymph nodes ARE involved, he is only having the orginally planned right hemi-coloectomy. With the lymph nodes involved chemo is a definite reality. If they weren't involved, then chemo would not necessarily be a part of the treatment. The plan is that the chemo will not only attack any damaged lymph nodes, but also any remaining cancer cells from the site of the polyp. So...take your pick A) you have to get chemo but also get to keep half of your colon or B) No chemo, but you lose your entire colon & have to change your lifestyle to be within arms reach of a bathroom for a very long time. Not an easy decision when actually faced with it.
Surgery will be open as opposed to laparoscopic. Dr Dachman wants to be able to see and feel everything including the surrounding organs and lymph nodes to be sure they don't miss anything. If anything looks suspicious, it comes out. Fine with me.
During the surgery on Monday a "Power Port" will be inserted under Mike's collar bone. This will enable him to have, as he puts it, "drive through chemo". We don't know a lot about it at this point, but it sounds as though he'll be able to do more at home rather than sitting at the hospital for treatment.
Following surgery Mike will be in the hospital for 4-6 days. He gets an epidural that will last up to 36 hours (lucky guy), but he also gets a catheter (sorry, trying not to laugh). We've decided after talking to Dr Dachman that we won't have the kids visit until Tuesday. Monday he'll be out of it for the most part anyway so there's no point in getting the kids upset about Daddy being "sick".
Mike asked the doc how long it would have been before he would have been obviously sick enough to see someone if it hadn't been for his failed PT run. Dr Dachman said within 90 days he would have known he needed to see a doctor. By Christmas his liver would be fully metastasized. And by this time next year, he wouldn't be with us.
There may be some people who wonder why God lets things like this happen. Mike lives right, eats relatively healthy, is active, doesn't fit the 50 years and up demographic, and is a good person. Up until now, I've always thought that it isn't God who "lets" things like this happen, faith in God is the reason we can get through the worst of the worst. I haven't changed my mind on that one. Even with as bad as it might get over the next year, I HAVE to believe that God will help us through this. I see God in so many things. The relationship we have with our primary doctor & the surgeon, the friends who have jumped in to help us when we may not even know what help we need, our family who has always stood by us and will continue to stand by us even if they are hundreds or thousands of miles away.
Thank you to Pastor Todd for introducing me to this song:
"Holy Now" by Peter Mayer
When I was a boy, each week
On Sunday, we would go to church
And pay attention to the priest
He would read the holy word
And consecrate the holy bread
And everyone would kneel and bow
Today the only difference is
Everything is holy now
Everything, everything
Everything is holy now
When I was in Sunday school
We would learn about the time
Moses split the sea in two
Jesus made the water wine
And I remember feeling sad
That miracles don’t happen still
But now I can’t keep track
‘Cause everything’s a miracle
Everything, Everything
Everything’s a miracle
Wine from water is not so small
But an even better magic trick
Is that anything is here at all
So the challenging thing becomes
Not to look for miracles
But finding where there isn’t one
When holy water was rare at best
It barely wet my fingertips
But now I have to hold my breath
Like I’m swimming in a sea of it
It used to be a world half there
Heaven’s second rate hand-me-down
But I walk it with a reverent air
‘Cause everything is holy now
Everything, everything
Everything is holy now
Read a questioning child’s face
And say it’s not a testament
That’d be very hard to say
See another new morning come
And say it’s not a sacrament
I tell you that it can’t be done
This morning, outside I stood
And saw a little red-winged bird
Shining like a burning bush
Singing like a scripture verse
It made me want to bow my head
I remember when church let out
How things have changed since then
Everything is holy now
It used to be a world half-there
Heaven’s second rate hand-me-down
But I walk it with a reverent air
‘Cause everything is holy now
Monday, July 5, 2010
The next step
Had a good time yesterday with family. Backyard fireworks were fun and it was great to spend some time NOT thinking about cancer.
I had a good talk with my mother-in-law. She is a cancer survivor herself and more than anything doesn't want Mike to have to go through the same pain of chemo and radiation that she did. I can't imagine what it must be like to have your child go through something like this.
Our good friend, Justin, came for a visit as well. I lost it a bit when he showed up, but I kind of thought I would anyway. He was best man in our wedding and just one of those people you know you may not see often, but will always be an important part of your life.
Tomorrow is our next step. The week and a half we've been waiting since the diagnosis has seemed at least twice that long. We see the surgeon at 11 and will hopefully have more information about the tumor. Is it contained within the colon or has it crossed muscle? Does it appear to be a "normal" cancerous tumor or something out of the ordinary? We may or may not have those answers tomorrow, but at least the oncology report will be available and might shed a bit more light on what we're dealing with.
I'm hoping we can sleep well tonight, but given the roller coaster ride my stomach has been on today, it doesn't seem all that likely.
I had a good talk with my mother-in-law. She is a cancer survivor herself and more than anything doesn't want Mike to have to go through the same pain of chemo and radiation that she did. I can't imagine what it must be like to have your child go through something like this.
Our good friend, Justin, came for a visit as well. I lost it a bit when he showed up, but I kind of thought I would anyway. He was best man in our wedding and just one of those people you know you may not see often, but will always be an important part of your life.
Tomorrow is our next step. The week and a half we've been waiting since the diagnosis has seemed at least twice that long. We see the surgeon at 11 and will hopefully have more information about the tumor. Is it contained within the colon or has it crossed muscle? Does it appear to be a "normal" cancerous tumor or something out of the ordinary? We may or may not have those answers tomorrow, but at least the oncology report will be available and might shed a bit more light on what we're dealing with.
I'm hoping we can sleep well tonight, but given the roller coaster ride my stomach has been on today, it doesn't seem all that likely.
Sunday, July 4, 2010
Independence Day
Some days are better than others - that's just the way it goes. Yesterday, for some reason was one of the more difficult days. Maybe it's just the idea that this "thing" is always with us despite the fact life goes on as usual. Being in this holding pattern of waiting isn't always easy. Let's get on with it and see what else we're dealing with.
Books on the subject of colon cancer or cancer in general are both a help and hindrance, I think. The options are endless, so is the hope. But, so are the unknowns. Did you know that genetic testing to determine if Cal & Zoey are at a higher risk can influence their ability to get health or life insurance down the road? It's better to know that now, but it definitely adds to the worry when my mindset isn't as positive as I want it to be.
I want to be independent of this thing that has wrapped itself around my husband and our lives.
Today will be better.
Saturday, July 3, 2010
Being proactive
In the last week two people close to us have made appointments for a colonoscopy because of Mike. Both are under 40 and more than 10 years away from the first "suggested" colonoscopy.
They are concerned enough to do it because they share one or more similar symptoms that MIke had. Although, it is only now looking back, that we understand they were warning signs of colon cancer and not just some random minor physical nuisances.
The kids
Yesterday we told the kids that Mike has cancer. The more we talk to each other and our support system, the more often the word comes up. Cal & Zoey needed to hear it from us before they heard it someplace else.
Neither of them seemed familiar with the word, cancer. This spring a kindergartner at Cal's school died from cancer. We wanted the kids to understand that Daddy's cancer is different and that we are hopeful that the surgery will get rid of it. We also told them about
Grandma "Moose" (Mike's mom) and how she overcame cancer the year I was pregnant with Cal. We wanted to warn them that they might see people acting upset about Daddy and that we don't want them to be afraid of that. Both kids seem to understand it is serious, but they don't seem to be too horribly disturbed by it. For that, too, I am grateful.
When Mike and I first talked about having kids we joked about passing on acne and crooked teeth. Now we talk about the reality of also passing on a risk of colon cancer & depression (I was diagnosed & have been on anti-depressants since the fall of 2006). Not quite so easy to joke about. Fortunately, we will be educated and can do as much as possible to limit the risks of both. Obviously, as in Mike's case, that doesn't mean it can't happen. But, would we have decided to not have kids had we known I would have depression & Mike would have colon cancer and that we could potentially pass those diseases on to our children? We can't protect our kids from everything, as much as we wish we could. None of this is our fault or the fault of our parents.
It just is.
Remaining realistic
While staying busy has been helpful, we are also realistic about what the immediate future may hold. If, in fact, the lymph nodes are also cancerous we know there will be a long haul with chemo. Getting things in order now will hopefully make that easier later.
I have amazing friends that are organizing a list of people that have offered to help in one way or another. Hopefully we won't need to utilize the list, but it will be there if necessary. I would list names of everyone who is trying to make this as easy as possible whether by physically doing something or being emotionally supportive, but I am afraid of forgetting a name or two. You know who you are and I love you.
The other day we took the kids to the beach. As usual the kids were both climbing all over Mike like he was a human jungle gym. At one point Mike told the kids to both hang on me so that "mommy will know she can bring you both to the beach alone". A week ago that comment wouldn't have fazed me at all. But now that same comment could mean something entirely different.
It's hard to believe it has only been 8 days since Mike's colonoscopy and we got the news. A lot has changed, but even more has remained the same. My kids still feel safe and loved, the people we thought were are friends have proven it again and again with their love & support, my family is as strong - stronger - than ever. I may hate cancer, but I love the life we have.
Staying Busy
Since finding out we have gone to a party at the CSA where we get our veggies, tied up loose ends at work, had dinner with good friends, camped overnight two nights, went to Great America & will spend time with extended family and enjoy the fireworks. Some people have wondered why we would do all of these things. Why not? Why should we sit home and wait and worry and make ourselves crazy about something we have no control over. We have a life to live. Some of staying busy is a defense mechanism, of course. The busier we are the less time we have to think about the "what ifs".
On the other hand it's a chance for us to remember what's really important. Spending time with friends and family. Reaching out to people we may not see much of anymore, but have a history with. It's funny, we have never even come close to using all of our cell phone minutes every month until now.
Great America yesterday was a perfect day. The weather was beautiful, the lines were short, the kids were excited and Mike's brother Ed & his wife Colleen joined us. Mike was tired, but was able to catch a quick nap while we rode a train around part of the park. Why would we want to sit at home and wait when we could be doing something fun? Without being fatalistic, we want to do as much as we can while Mike is feeling fairly well. At the minimum he's having major surgery in just over a week and will be recovering from that for at least a couple of weeks.
Something to think about
Other thoughts that come and go include wondering why now? What happened that this beast became apparent after 3-5 years of silently attacking my husband?
In March Mike had a roll over accident on his way to Truax Air Base in Madison. The truck was totaled, but he walked away from it. He saw a doctor the next day because he was concerned there may be glass in one eye - there wasn't, it was just a speck of dirt. A couple of days of Tylenol and everything was fine. Now I wonder if it really was? Maybe the jarring of his body as the truck rolled was enough to start the slow bleed from the tumor. We'll never know, but it makes me wonder if a roll over accident on the way to Air Force duty actually helped save his life.
Between the accident and his PT test it seems logical to me that the accident started something that over time was taking it's toll on Mike (anemia from the slow bleed) and ended with him failing his PT run. Without the accident, maybe there would have been no bleeding. With no bleeding, maybe no anemia. With no anemia, no doctor visit. With no doctor visit, a tumor that would have continued to grow silently for who knows how long.
From the bad something good
Obviously hearing a diagnosis of cancer is overwhelming. But, equally overwhelming is the incredible amount of love and support we have been shown by our friends and family. I continue to be amazed by the outpouring of well wishes & "what can we do". Mike has touched so many lives with his incredible generosity, humor & willingness to do anything for anyone. He constantly gives without expecting anything in return. He is my hero and I strive to be like him in giving without expecting anything.
This will also be a good learning experience for me. A test even. I have no hesitation about helping when someone asks me for help. But for me to ask someone else for help - that's a different story. I know that after surgery we may be in a position where I will NEED help and I have to learn to ask and accept that help. It's easy for me to think I have to "do it all", but realistically I also know it's impossible to do it all and stay sane. Admitting that and acknowledging it now will help, I think, when the time comes. I want to be available to Mike & the kids as much as possible, but that will mean letting other things go.
Now what?
The amount of information about colon cancer & its treatment is overwhelming. Want to know what types of chemo have what side effects? How about the difference between stage 3 & stage 4 or Dukes A, B, C? Or survival rates - that's a good one. But, what if the only information you have is "you have colon cancer and it will need to be surgically removed." There is no information that I have been able to find to describe the roller coaster of emotions that occur between diagnosis, confirmed diagnosis & surgery.
At this point we have absolutely no idea what we will be dealing with after July 12. All we have is the initial diagnosis. July 6 will be the confirmation from the oncologist.
The first 48 hours were spent in a state of shock as best as I can tell. Not a lot of tears, but plenty of fear of the unknown. I just wasn't able to "go there" and really think about what might or might not happen. Two nights of not sleeping & not really eating & just going through the motions of everyday life. Life needs to go on as normally as possible for the kids, which in some ways, makes the days easier.
Telling the kids wasn't as hard as we thought. We had the benefit of Zoey having had her tonsils out earlier in the year. Framing Mike's tumor (we weren't ready to tell the kids it was cancer) in that way made it easier for the kids to understand. Just like Zoey's tonsils weren't helping her and needed to come out, Daddy has a tumor in his colon that needs to come out because it shouldn't be there. They continue to ask questions and we continue to answer them. I made an appointment with a counselor Cal had seen in the past after Mike's roll over accident. Just in case. The appointment is for July 7 and the kids know if they want to talk to Laura they can. Or, maybe I will. Or, maybe we all will. That's the thing - we just don't know.
Thursday, July 1, 2010
How to deal?
While at the hospital we made the phone calls. Usually met with "What?" or "Who has cancer?" Amazingly, or maybe not, there were few tears. I think shock took over for the most part. I know it did for me. How else could I have a seemingly normal conversation about the love of my life, my best friend being diagnosed with cancer?
Since leaving the hospital & notifying most everyone we could think of we were left to wonder Now what? What do you do with that kind of news. OK, we meet with the surgeon again on July 6. At that time he'll have the oncology report to confirm again that Yes, it is cancer. July 12 is surgery to remove the right half of Mike's colon along with I don't know how many lymph nodes. Problem is - beyond that we don't know anything.
Good and not so good news
After Mike got back from the x-ray & CT scan, the doctor told us that fortunately the lungs & liver appear to be clear, but the lymph nodes are swollen, which could indicate the cancer is spreading beyond the colon.
Apparently this beast has been forming for 3-5 YEARS! This, in a man with no risk factors. He's too young, too active, eats too healthy, and has no family history of colon cancer. There seems to be no explanation for why it has taken up residence inside Mike.
The longest day of my life continues as Mike is told he needs three units of blood before he can leave the hospital. For a guy who donates blood on a regular basis he was a bit weirded out by actually getting blood instead of giving it.
Later that evening Dr. Kramer comes in to see us. He wanted to be with the surgeon when he told us about the cancer, but timing and other committements on both ends didn't allow it. Anyway, Dr Kramer looked tired. He has been our family's doctor since we moved to Dodgeville more than 6 years ago. He was also born the same year as Mike. I imagine as a doctor it has to be difficult to be reminded of how fragile life can seem when someone you have provided care to is dealt such a huge blow.
The good news is Mike is young and healthy (aside from that cancer thing), the bad news is, being young and healthy presents the possibility that the tumor isn't "normal cancer". Of course we won't know anything about that until after surgery and the biopsy.
After discussing the pros and cons of a community hospital and a big city hospital, Mike & I are more assured than ever that this is where we want to be for the surgery. Nearly our entire support system is here. Our parents are close enough that they can be here within hours. Cal & Zoey can visit Mike in the hospital at any time. We can't think of a single reason to not take care of this in Dodgeville.
At 9pm we finally go home - still in shock. The kids are staying overnight with a friend so we don't have to face them until the morning. What do we tell the kids? How much do we tell them? They're only 4 and 6. This isn't something any little kid should EVER have to deal with. Hell, NOBODY should have to deal with this.
Now I know what it feels like
Thursday evening-Friday morning
Mike drinks a concoction that is designed to "cleanse his colon" 8 ounces every 10 minutes for an hour. Take an hour off. Repeat until clear.
Mike & I arrive at the hospital for the 11:30 appointment, go through the registration, into the prep/recovery room, he puts on his cute hospital gown and he is hooked up to an EKG & IV. The nurse is a good friend of mine who gives Mike a hard time just because she can.
The anesthesiologist comes in and preps Mike for the procedure as he'll be completely knocked out for it. Not long after he is wheeled away for both the upper & lower GI scopes. About 45 minutes later the nurses bring Mike back to the prep/recovery room, get him situation, rattle off some numbers, say something to the anesthesiologist about removing a polyp and nobody says a word to me other than "he went through everything just fine and should be waking up in the next five minutes or so".
About 10 minutes later, Mike wakes up. Nobody comes to the room for the longest time. I finally went out to ask if he could at least have some water and eventually a nurse came back to say she was sorry, but the doctor ordered more tests. An x-ray and CT scan would be taken in about an hour or so. In the meantime Mike gets to drink more of the "GoLightly" crap to clean out his already cleaned out system. We are told that the doctor would be in to see us before going to x-ray.
Then nothing. The nurses leave. We wait.
About 45 minutes later the doctor comes in and looks really uncomfortable. Somewhere in the back of my head I can hear myself saying "don't say it, you are not going to say what it looks like you are going to say". What I hear instead is, "There's no easy way to say this, but Mike, you have colon cancer". Now I know what it feels like to hear "you have cancer". Of course it wasn't said to ME, but it might as well have been. Mike is me. I am him. It's always been us.
I'm not sure what else was said during the next bit of eternity because I was too busy trying not to throw up or pass out. My chest hurt and I couldn't get any air. Apparently, yawning is a reflex to get more oxygen into your body because I just couldn't stop yawning and I was anything but sleepy.
You're anemic? Really?
Monday morning, June 21
Mike sees Dr. Kramer who orders a blood draw to find out what's going on. Hooked him up to an EKG too. EKG results were just fine so now we had to wait on the blood results.
Monday afternoon
Dr Kramer calls and tells Mike he is "significantly anemic". Huh? Wouldn't that have shown up one of the gajillion times he donated blood? Next question was if Mike had noticed any bleeding. Nope. Nothing. So, wait for more blood test results to find out why he's anemic.
Wednesday morning, June 23
Mike is anemic due to low iron stores. Basically, his body had used up all of the iron it was saving for a rainy day. Grab an umbrella, the storm is about to start. His red blood cell count was way down so the little oxygen he had in his blood was working overtime, which is why he had been so worn out. Determination is made that Mike is bleeding internally. But, where?
Wednesday afternoon
Need to find out where the blood is coming from. Doc orders a Fecal Occult Blood Test to do at home and from that it is obvious there is blood somewhere in his GI system.
Thursday, June 24
Dr Kramer calls and says he's scheduling Mike for an upper & lower GI - tomorrow.
Thank God for the Air Force
Mike had been feeling "out of shape" for awhile and, of course, not letting on to me that he was feeling lousy. Then came annual PT - the dreaded mile and a half run. After pushing to get to the finish line Mike came in 4 minutes slower than one year ago and had barely made it at that. That's when I got his phone call to "go ahead and make an appointment with Dr Kramer". I joked that he was just getting old, never realizing just how awful Mike was feeling. Again, because he didn't let on. Guess it's a guy thing.
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